PIP Activity 11: Planning and Following Journeys - Complete Scoring Guide

Activity 11 is the first of two MOBILITY activities. It covers planning a journey and following its route. This is PIP2 Question 13. This activity is about cognitive and psychological ability to navigate, not physical walking. If you get lost, cannot use public transport due to anxiety, or need someone with you on journeys, this is your activity.

The Descriptors and Points

a. Can plan and follow the route of a journey unaided - 0 points.

b. Needs prompting to undertake any journey to avoid overwhelming psychological distress - 4 points. Someone needs to encourage you to leave the house. You would not make any journey without someone prompting you. Common with agoraphobia and severe anxiety.

c. Cannot plan the route of a journey - 8 points. You cannot work out how to get somewhere, which bus to take, or navigate even familiar routes. Common with dementia, learning disabilities, and brain injury.

d. Cannot follow the route of an unfamiliar journey without another person, assistance dog, or orientation aid - 10 points. You can follow familiar routes but get lost on new ones. Need someone with you for unfamiliar places.

e. Cannot follow the route of any journey without another person, assistance dog, or orientation aid - 12 points. You get lost even on familiar routes.

This Is NOT About Walking Distance

Activity 11 is about PLANNING and FOLLOWING routes. Activity 12 is about physical walking. They are separate. You can score on both. Someone who can walk 100 metres but gets lost or panics on public transport scores on Activity 11 AND may score on Activity 12.

Conditions That Score Here

Agoraphobia (cannot leave house), severe anxiety (panic on public transport), autism (cannot cope with unfamiliar environments), dementia (gets lost), learning disabilities (cannot plan routes), visual impairment (cannot read signs), PTSD (triggered by crowds), epilepsy (fear of seizure on public transport), Meniere's (vertigo attacks making travel unsafe).

What to Describe

When was the last time you made an unfamiliar journey alone? If you cannot remember, that says everything. Describe what would happen if you had to go somewhere new alone - the anxiety, the disorientation, the risk of getting lost. Describe any journeys you have avoided or cancelled because of your condition.